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PTC-Related Internet Sites

(Disclaimer: This web page is a compilation of web sites that have been gathered from many sources. Some sites may have gone out of service over time, or may be duplicated in the listing. Please be patient with your searching.)

Quick Computer Tip: an easy way to get to UNLINKED long web site addresses is to highlight the address, copy it, and paste it in your web browser. Much easier than trying to re-type it!

Check out this article on CSF leaks. "Spontaneous Spinal Cerebrospinal Fluid Leak: A Review"
Do a search on Medscape.com if the link does not work for you

www.djo.harvard.edu/meei/PI/pseudotcereb.html

"Anyone considering a gastric bypass- there is a wonderful site called obesityhelp.com that goes in to detail about the different types of weight loss surgery, has a list of insurance that have been known to cover, and talks about what ins need to cover it" http://webeye.ophth.uiowa.edu/dept/IIH/pc_index.HTM

E-Medicine website has interactive pictures of what PTC looks like in the eye- and you can move your mouse around to interact
with the picture. http://www.emedicine.com/NEURO/topic329.htm

http://www.painnet.com/

www.invisibledisabilities.com

http://www.angelfire.com/ok/PTCSupportNetwork/

http://webeye.ophth.uiowa.edu/dept/iih/pc_index.htm

http://yoursurgery.com Search for: /data/Procedures/hydrocephalus/p_hydrocephalus.htm

Cool Internet support group ongoing web site- http://www.geocities.com/elfsmommy/index.html

http://hometown.aol.com/spanishiis/health.html

http://www.neuroland.com/ha/pseudo_cer.htm

"home page to a group called Needy Meds Service. If your drug isn't on the list, see if your doctor can prescribe a similar one from the low cost list. It's easier to come up with $5 or $10 for a drug on the list that works just as well than it is to come up with $120 for a non-listed one. Here is the address: http://www.needymeds.com/

"There are two PTC support groups at ONElist.com.: ptc@onelist.com, and ptc-support-group@onelist.com. The second is the "big" ptc support group at ONElist. It is very similar in name. The first support group is more intimate. The second one has a member's website, a chatroom, a Delphi Forum, and many other additional features.

"Here is a neat link about avoiding LP headaches. Thought it was worth passing along.
http://www.geocities.com/HotSprings/Villa/5422/index.html

PTC LINK http://www.geocities.com/Wellesley/Garden/1297/

("Here's a site for an article for MEDSCAPE. If you aren't registered at MEDSCAPE, then go to www.medscape.com and register. It's free. You do need to approach it from the sign in page. It looks like the article was in Volume 7, number 4 in 1999. Use key words pseudo-tumor cerebri or VP shunt"). www.medscape.com/AANS/NF/1999/V07.n04/nf0704.10zema/nfo704.10.zema-01.html "Seven-Year Clinical Experience with the Codman Hakim Programmable Valve"