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The PTC Primer...
Living with Pseudotumor Cerebri

Written and Edited by Sondra Johnson
Sponsored by the Pseudotumor Cerebri Support Network

copyright © 2000
by Sondra Johnson

All Rights Reserved
Created in the United States of America

January 2000

No part of this document may be reproduced in any form without
permission from the author, except with acknowledgement
of the author and the Pseudotumor Cerebri Support Network
as originators of said information, and with the purpose of
communicating information about the disease Pseudotumor
Cerebri to those in need.

Published by the Pseudotumor Cerebri Support Network
Powell, OH.

· Disclaimer: we remind you that the contents of this book are for informational purposes only. Personal symptoms, treatments, medications and research theories should be discussed with your physician.

Chapter One: Introduction
About the Pseudotumor Cerebri Support Network... What's In A Name

Chapter Two: The Basics
Pseudotumor Cerebri: The Big Picture... Symptoms of PTC... Characteristics of PTC... PTC People-Who Are You... Clearing Up Myths About PTC... This and That... Photo Examples of PTC

Chapter Three: Update: Meds, Treatments, Research, Etc.
Pathway 1: Pharmaceutical... Pathway 2: Surgical Intervention... Pathway 3: Diet... Pathway 4: Alternative Treatments... PTC Chronic Pain Primer... PTC Research and Theories... Meds FYI

Chapter Four: Physicians Speak Up...
Dr. Benes Answers Your Questions... Dr. Corbett Talks to PTC Patients... Dr. McGregor Answers Your Questions... Dr. Singman- PTC in Rural America

Chapter Five: Resources
Organizations... Comfort Corner... Recommended Reading... Miscellaneous... The Internet... Published Articles... Other Support Groups

Chapter Six: PTC People Speak Up
From the Mouth of the Experienced... FYI... General Feedback... Oddities... Symptoms... Treatments... Lumbar Punctures... Holistic Help... Weight Loss... Bad Doctors

Chapter Seven: Of Interest
Interviews with PTC Survivors... Speak Up... A Thump On the Head

Chapter Eight: Finding A Neuro-Ophthalmologist