Join the PTC Database!

As of September 2001, we had a listing of over 1000 people suffering with pseudotumor cerebri in our database. Joining is free. This started out as our mailing list for our newsletters.

Why do we still keep it? For the benefit of specific member's needs, and as a potential source of candidates for future PTC research. What we do NOT do with it is give out information to anyone for commercial or non-PTC purposes. (Your name, address, etc. are safe with us, folks.)

Examples of how we have used this database:
· one woman wanted to know if we had any PTC people in her land of Australia (we've got several); we sent her info on fellow sufferers 'down under.'
· a mother with a young son who has PTC wanted to know if we knew of any other young boys with PTC; we sent her the names of two others moms in the same situation.
· a fellow PTC'er wondered if she was the only one in Atlanta with this condition; we sent her the name of someone else.

So, join our database! It doesn't cost you a thing, we'll keep your information safe and sound, and we'll only use it for good things. To add your name and info, send an email including the following:

• Name
• Complete Mailing Address
• E-mail Address
• Phone Number
• Any other information you feel would be useful to share

Send information to: ptcduncan@juno.com